Wednesday, August 26, 2015


I feel like its been for ages that I've been on here well actually it has been. Being so sick I couldn't function let alone write. So let me explain about my meds. The cellcept was really effecting me for the worse I had no idea because at first I was fine a little nauseous but nothing to crazy and as I got used to it it would get better and doc would raise it. He always starts me on low doses and then each time I would go to see him he'd raise it. Well before you know it once the medicine built up in my system it started to effect me like I had mentioned in the other posts about the stomach issues and diarrhea and not being able to eat or do anything for that matter. I lost about 15 pounds and so my son and husband figured out it was the meds. The doctor thought we were nuts but as soon as I went off it I was able to eat and my diarrhea went away and no more stomach issues at least from that. after I started feeling better i even got to go away on vacation to see my daughter and son in law in north carolina and my other children and grandchildren in new york. It was great but very exhausting little did I know my husband wanted me to go cause he was afraid I wouldn't ever be able to go. I guess he thought I was dying. He even called my doctors which I didn't know at the time and told them they better get together and figure something out because every night he would watch me sleep thinking I was going that night. Pretty scary I guess, but when your the sick one you don't have a clue.

Time went by and doctor wanted to know what he was going to put me on because I've been on it all.
So I told him that immuran worked for me about 10 or 15 years ago so why don't we give it a try and so we did. As usual he started me on a low dose 25mgs and now I'm on 125mgs. Things seemed to be fine for a while, but it seems my compliments haven't gone up much and need to be higher. Also I've been extremely tired like I can't move again and the other day I started feeling sick to my stomach again. OH NO NOT AGAIN. I'm not going through this again am I. well I stopped taking the extra 25mgs he said to take a few days ago and still was feeling the same so today I didn't  take it at all and no stomach ache so far. I'm not walking around holding my stomach and have to sit because I'm so pooped and sick. I'm going to see what happens and then I guess I'll call him and have to give him the news. Oh well I don't know what I'm going to take next we will have to wait and see.

Anyone have any ideas let me know I'm open for suggestionsBeen there, done that and it was really hard. The very reason I am not on pain meds.

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