Finally, the doc upped the cellcept. I'm now on 1000 mgs which is still a little, but like he says I'm very sensitive to meds and if he would have giving me the whole dose at once in two days I would have called him and told him to get me off this stuff. So anyway I take one in morning and one in evening and I can't wait till he increases again because I would really like to feel better. I am still exhausted can't get myself going. I find myself getting up after nine in the morning because no matter how tired I am I can't fall asleep at night. I have been extremely emotional I don't know if I'm suffering depression now or it's just from not feeling good.
Friday, May 23, 2014
This has been an incredible two weeks this week the rash around my eyes got so bad I had to see dermatologist she said it was the lupus, I don't ever remember having it this bad. It was and still is itchy and it was burning. When it was at its peak it looked like I belong in the jungle. I mean ugly. So make sure you stay covered out there when they say wear sunscreen and a hat and glasses they ain't kidding, especially if your photosensitive. It really seems like I have to stay indoors during the day because I live in Florida and it's already 90 degrees out crazy right.This has been so uncomfortable.
doing so much.