Friday, May 23, 2014


Finally, the doc upped the cellcept. I'm now on 1000 mgs which is still a little, but like he says I'm very sensitive to meds and if he would have giving me the whole dose at once in two days I would have called him and told him to get me off this stuff. So anyway I take one in morning and one in evening and I can't wait till he increases again because I would really like to feel better. I am still exhausted can't get myself going. I find myself getting up after nine in the morning because no matter how tired I am I can't fall asleep at night. I have been extremely emotional I don't know if I'm suffering depression now or it's just from not feeling good.


This has been an incredible two weeks this week the rash around my eyes got so bad I had to see dermatologist she said it was the lupus, I don't ever remember having it this bad. It was and still is itchy and it was burning. When it was at its peak it looked like I belong in the jungle. I mean ugly. So make sure you stay covered out there when they say wear sunscreen and a hat and glasses they ain't kidding, especially if your photosensitive. It really seems like I have to stay indoors during the day because I live in Florida and it's already 90 degrees out crazy right.This has been so uncomfortable.
doing so much. 

Friday, May 16, 2014