GOOD DESCRIPTION OF WHAT WE GO THROUGH

Sometimes its hard to explain what a person with lupus suffers i thought this was pretty good each day could be something else even if your not in a flare
so looking forward to the day when" no resident will say I am sick "(Isaiah 33:24)

HOW TIRED IS TIRED

Denise Austin My favorite instructor

This is my favorite video exercise ever it's not to difficult for those that have problems excising like me. I started this in 2006 I had it on video used it so much it doesn't play anymore, so then I rented it at the library but you got to bring it back and then can't renew it so you try doing other things when I seen this on you tube I was so excited that I can do something not to difficult for me in my own house in the air conditioning out of the sun and heat which makes me sick anyway. I'm not saying that I do this everyday but I really have to push myself to do it. It's a great motivator Denise makes you feel good just like she's talking to you  

IT COULD HAVE BEEN A MINI STROKE

I can't believe what this week has been like. Wednesday night after our congregation meeting we came home  Got into our regular routine had something to snack on and I went to bed. All of a sudden I heard banging and didn't know what was going on I came out of the room and there was my husband pinned up against the wall said with slurry speech that he just lost his balance but he could not walk it was the scariest thing I ever seen. Of course he has to be Mr macho and not want to go to hospital and would not let me call 911. I walked him over to the couch and in a few minutes about 10 minutes I guess he was fine. , just scared.
I started to do research and he had all the symptoms of a mini stroke. I spoke to a few of my friends in the health care field and they said he better go get checked before another one comes and it may not be a mini so I took him Friday after he finished work and went to emergency room and they were awesome took him in right away and checked him out gave him a cat scan, blood work and all that stuff, but nothing showed on the brain because it was too late or left no damage which is great I'm glad no harm was done. Tomorrow we are going to see the doctor and I'm sure she is going to send him to neurologist.
    Any way this happening was an eye opener and made us think that last month when I was away at my daughters helping out with the new baby my husband was going to see his brother who is a snowbird. On his way there he got confused and called his brother because he didn't know what street to turn on and I guess he must have been swaying dropped his phone and the next thing he was stopped by police and they thought he was drunk. They gave him the breathe test and it was 0 then they weren't happy with that and made him walk the line which he failed terribly he thought because of his menares disease or his degenerated disc disease anyway they arrested him had a terrible night in jail and I didn't even know till the next day. So we put two and two together and we think he must have been having a min stroke that night and the cops did not even think the was having a medical emergency. He lost his licence and we have to go to a hearing tomorrow for his licence and the following week for arrest we don't have a laywer cause who could afford that with both of us on disability and so when he goes to court hopefully he will be able to get a public defender. The past few weeks have been a night mare and I hope it all turns out well.

Transient ischemic attack

Mini stroke; TIA; Little stroke

A transient ischemic attack (TIA) is when blood flow to a part of the brain stops for a brief period of time. A person will have stroke-like symptoms for up to 24 hours, but in most cases for 1 - 2 hours.

A TIA is felt to be a warning sign that a true stroke may happen in the future if something is not done to prevent it.

Causes, incidence, and risk factors

A TIA is different than a stroke. After a TIA, the blockage breaks up quickly and dissolves. Unlike a stroke, a TIA does not cause brain tissue to die.

The loss of blood flow to an area of the brain can be caused by:

• A blood clot in an artery of the brain
• A blood clot that travels to the brain from somewhere else in the body (for example, from the heart)
• An injury to blood vessels
• Narrowing of a blood vessel in the brain or leading to the brain

High blood pressure is the number one risk for TIAs and stroke. The other major risk factors are:

• Atrial fibrillation
• Diabetes
• Family history of stroke
• High cholesterol
• Increasing age, especially after age 55
• Race (African Americans are more likely to die from stroke)

People who have heart disease or poor blood flow in their legs caused by narrowed arteries are also more likely to have a TIA or stroke.

See also: Stroke risk factors

Symptoms

Symptoms begin suddenly, last only a short time (from a few minutes to 1 - 2 hours), and go away completely. They may occur again at a later time.

The symptoms of TIA are the same as the symptoms of a stroke, and include sudden:

• Abnormal feeling of movement (vertigo) or dizziness
• Change in alertness (sleepiness, less responsive, unconscious, or in a coma)
• Changes in feeling, including touch, pain, temperature, pressure, hearing, and taste
• Confusion or loss of memory
• Difficulty swallowing
• Difficulty writing or reading
• Drooping of the face
• Inability to recognize objects or people
• Lack of control over the bladder or bowels
• Lack of coordination and balance, clumsiness, or trouble walking
• Loss of vision in one or both eyes
• Numbness or tingling on one side of the body
• Personality, mood, or emotional changes
• Trouble saying or understanding words
• Weakness on one side of the body

http://www.strokeassociation.org/STROKEORG/AboutStroke/TypesofStroke/TIA/TIA-Transient-Ischemic-Attack_UCM_310942_Article.jsp

PRANCERCISE

I seen this on the news tonight at first I thought it was the funniest thing I've seen but look at this lady she is 60 years old and looks great. Funny thing she live in my area in florida which really brings it home. I wonder if I've seen her on the streets, in the stores or maybe I knocked at her door since I'm one of Jehovah's Witness's and love helping people learn about God and his purposes. Anyway if this is what she's been doing for years and looks this good it could be worth a shot trying it.

IT'S BEEN A WHILE

Sorry I haven't written in a while. My brain I guess is on overload and can't think straight. I keep coming on here to write whats been going on in my life but as usual I get on and haven't got a clue. I can't believe my new granddaughter is already two months old what a little doll she is so cuddly and sweet. She is already laughing and getting excited when you put her on the dressing table and change her. I think that's one of her most favorite spots. Of course she must feel free and able to stretch. She loves going for walks in her carriage and if she's crying and you put her in the car she stops seems to love being out doors. I have been there alot these past two months trying to help out but I think I just like being there to feel close to her. Her older sister Alexis is seven and she loves when grandma is there and every time I have to leave she tells me to stay another day. I think she just likes playing games on my phone cause no one else gives her their phone to play with. Any way that's been about it, now I need some down time my body is pooped and my complements are still low. Getting extremely hot and humid here in south Florida rainy season starts in June.
Not looking foward to the heat.

Help Us Solve the Cruel Mystery

This Lupus Awareness Month, join the Lupus Foundation of America in efforts to solve to the cruel mystery.

10 THINGS TO HELP

Featured Article: Summer 2010 issue of Lupus Now

10 Things You Can Control in a Conflict
By Vivian Scott

Dealing with conflict takes energy, and when you’re living with lupus, energy can be in short supply. If you’ve tried your best to resolve a problem, but it still remains, consider using these 10 ways to regain control.

1. Your Plan - Visualizing the future helps you focus beyond temporary problems.
   
2. Your Perspective - Stop and reassess your point of view and find a learning opportunity in the situation.
   
3. Your Responses - Look for ways to respond that don’t escalate anxiety.
   
4. Your Investment - Spend less time thinking about it, talking about it, and engaging in it.
   
5. Your Role - It takes two to tango, and if you stop dancing, the conflict has no choice but to diminish.
   
6. Your Expectations - Changing expectations doesn’t mean lowering them. Stop holding others to standards they don’t know they’re being measured against, and get a new yardstick!
   
7. Your Energy - Direct your energy elsewhere: toward family, classes at the gym, continuing education, or friends.
   
8. Your Own Story - Give accounts without elevating or victimizing anyone. Say, “It’s a difficult time right now, but I am learning a valuable lesson,” rather than, “Once again, I am the victim.”
   
9. Your Method for Processing Emotions - Talk with a trusted source, keep a journal, get some exercise, or write letters you’ll never send.
   
10. Your Character - Show your best side and not an unchecked series of poor reactions.

Vivian Scott is the author of Conflict Resolution at Work for Dummies. Both she and her daughter, Vanessa, have lupus and were featured in the Summer 2009 issue of Lupus Now in the article “What’s in Your Family Tree?”

COMPLEMENTS LOW

My husband is funny he tells the doctor when the doc says my complements are low " I don't understand I complement her all the time". Funny man I do love him and thank god for him every day cause he is a big help to me. He helps cook clean and even grocery shops. Not only that but works part time and I say part time cause he too is disabled. So he is always in pain he has degenerated disc disease so you could imagine the pain. Anyway when my complements are low that means my lupus is flaring so this past month that's what happened and that's why I've been so extremely tired. So he raised my steroids. Amazing how much it helps I definitely don't feel as bad as I did, but each day has its own ups and downs depending on what I do.

   even though I have been going through this low I have awesome news I am a grandma again for the fifth time A GIRL 8 POUNDS 8 OZ HER NAME IS MALIA SKYE

SO TIRED ALL THE TIME

I don't know what I've been going through but I haven't even wanted to post anything. I have been so exhausted DUH I forgot I have lupus I'm always tired. I really feel like a broken record saying how tired I am. It seems like things are just getting harder and harder and I don't know about anyone else but when I'm not feeling good I also feel guilty. Guilty that I'm too tired to clean, cook, or even go anywhere. Guilty I'm not a good wife, mother or grandmother. I even feel guilty that I'm not working helping out with the bills.I wish there was a way I could be clear headed and not worry about all these things, but I think it has something to do with this crazy illness.